Thursday, April 9, 2009

Holy ThursDAY -following wildly busy night

As we begin Good Friday,
Apparently position - flat, hyperextended - Leenie had to be in during stomach tube placement caused much congestion and accompanying oxygen hunger during the night. Kath started to leave @ midnight, shortly after Phil & I left w/ Leenie looking/sounding fine, but could not b/c suddenly the congestion, air hunger went into hi gear. Leenie looked appropriately frightened & essentially fought Kath all night. She wanted to leave, & there was no changing her mind. We called Kath's cell @ 12:30 b/c we were worried but she said she was leaving in 15 minutes. Not. By 3:30, I was afraid to call & wake Kath or ?interrupt care. Kath got in @ 5:30 after Leenie FINALLY went to sleep. "Now Eileen, you can't get out of bed. You may fall. The rule is for you to stay in bed. I wouldn't lie to you." Leenie: "Yes, you would. " delivered w/ the coldest of shoulders. And so it went until her oxygen levels finally came up after LOTS of suctioning.
During the day, she was comfortable, compliant and had excellent oxygen levels with the help of the staff & big brother tending to getting those secretions out. Dr. Cross said chest x-ray shows new, lg. fluid accumulation in rt lung probably from aspirating food. She is on new IV antibiotics for that, started food/med feedings this evening through new tube & was sleeping w/ a smile after seeing Tim who drove down to surprise her around 11. She can't have radiation unless she can be flat b/c @ a raised angle, it would cause more damage to lungs & less to Henry. So, she will get stronger on tube feeds, move around more (loosen secretions) as she did today - walked w/ cane & rt arm sling from chair to bed and, hopefully, not have any lung crises & be able to be flat for 15 min in comfort for radiation, possibly as an out patient.
She knows it's in God's hands, is looking forward to Easter w/ the boys and will do everything she can to get those shots @ Henry. She sports a half pony-tail "do" w/ a bright green scrungy & had a great "watermelon pink" gloss smile on today. She'll receive communion again tomorrow & hopes to walk more and raise the head of the bed less. And less. . . Lorane et al ,